If you are interested in participating in research,
Welcome to the Ectodermal Dysplasias International Registry. The purpose of this registry is to consolidate information on those affected by ectodermal dysplasias into a single data repository which will be utilized to enable research and clinical trials leading to future treatments and cures. If you have or are registering for an individual affected by ectodermal dysplasia, please register with the National Foundation for Ectodermal Dysplasias (NFED). This registry is an international registry and includes all ectodermal dysplasia subtypes.
